{"id":9032,"date":"2017-09-05T08:38:41","date_gmt":"2017-09-05T07:38:41","guid":{"rendered":"http:\/\/www.wjst.de\/blog\/?p=9032"},"modified":"2019-11-03T07:21:57","modified_gmt":"2019-11-03T07:21:57","slug":"datafication-of-health","status":"publish","type":"post","link":"https:\/\/www.wjst.de\/blog\/sciencesurf\/2017\/09\/datafication-of-health\/","title":{"rendered":"Datafication of Health"},"content":{"rendered":"<p>I had the unique chance yesterday to hear a talk of Minna Ruckenstein (University of Helsinki) about datafication of health. I think this is one of the most important topics of the last decade &#8211; being one of the largely underestimated, largely ignored development, but nevertheless relevant for the future of medicine. It basically means conversion of health into data (like Facebook is converting communication into data) which happens on multiple scales and at multiple levels. Her excellent paper at Annual Review of Anthropology was just posted a month ago and can be downloaded at the <a href=\"http:\/\/The accompanying paper http:\/\/www.annualreviews.org\/doi\/pdf\/10.1146\/annurev-anthro-102116-041244#article-denial\">journal website<\/a> (or at SciHub).<\/p>\n<figure id=\"attachment_9034\" aria-describedby=\"caption-attachment-9034\" style=\"width: 620px\" class=\"wp-caption alignleft\"><a href=\"https:\/\/www.wjst.de\/blog\/wp-content\/uploads\/2017\/09\/20170904_191700_DSCF3368.jpg\" data-rel=\"key-image-0\" data-rl_title=\"Minna Ruckenstein, ChipMe Meeting, Galway, Ireland\" data-rl_caption=\"Minna Ruckenstein, ChipMe Meeting, Galway, Ireland\" title=\"Minna Ruckenstein, ChipMe Meeting, Galway, Ireland\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-9034\" src=\"https:\/\/www.wjst.de\/blog\/wp-content\/uploads\/2017\/09\/20170904_191700_DSCF3368-620x620.jpg\" alt=\"\" width=\"620\" height=\"620\" srcset=\"https:\/\/www.wjst.de\/blog\/wp-content\/uploads\/2017\/09\/20170904_191700_DSCF3368-620x620.jpg 620w, https:\/\/www.wjst.de\/blog\/wp-content\/uploads\/2017\/09\/20170904_191700_DSCF3368-150x150.jpg 150w, https:\/\/www.wjst.de\/blog\/wp-content\/uploads\/2017\/09\/20170904_191700_DSCF3368-768x768.jpg 768w, https:\/\/www.wjst.de\/blog\/wp-content\/uploads\/2017\/09\/20170904_191700_DSCF3368-500x500.jpg 500w, https:\/\/www.wjst.de\/blog\/wp-content\/uploads\/2017\/09\/20170904_191700_DSCF3368.jpg 1000w\" sizes=\"auto, (max-width: 620px) 100vw, 620px\" \/><\/a><figcaption id=\"caption-attachment-9034\" class=\"wp-caption-text\">Minna Ruckenstein, ChipMe Meeting, Galway, Ireland<\/figcaption><\/figure>\n<blockquote><p>Recognizing that the datafication of the traditional health ecosystem is generating new power asymmetries and disrupting traditional regulatory and ethical mechanisms, some scholars have embarked on applied research projects, often collaborating outside their academic spheres. These citizen-centered initiatives appeal to patient organizations, savvy self-trackers, and ordinary people to address issues such as the tension between data openness and data ownership; asymmetries of data usage and distribution; the inadequacy of current informed consent and privacy protections; and the need to reappropriate and rearticulate concepts such as \u201csharing\u201d and \u201cthe public good\u201d that have been co-opted by technology companies seeking free access to their users\u2019 data.<\/p><\/blockquote>\n\n<p>&nbsp;<\/p>\n<div class=\"bottom-note\">\n  <span class=\"mod1\">CC-BY-NC Science Surf , accessed 14.04.2026<\/span>\n <\/div>","protected":false},"excerpt":{"rendered":"<p>I had the unique chance yesterday to hear a talk of Minna Ruckenstein (University of Helsinki) about datafication of health. I think this is one of the most important topics of the last decade &#8211; being one of the largely underestimated, largely ignored development, but nevertheless relevant for the future of medicine. It basically means &hellip; <a href=\"https:\/\/www.wjst.de\/blog\/sciencesurf\/2017\/09\/datafication-of-health\/\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">Datafication of Health<\/span> <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[2070],"class_list":["post-9032","post","type-post","status-publish","format-standard","hentry","category-computer-software","tag-facebook"],"_links":{"self":[{"href":"https:\/\/www.wjst.de\/blog\/wp-json\/wp\/v2\/posts\/9032","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.wjst.de\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.wjst.de\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.wjst.de\/blog\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.wjst.de\/blog\/wp-json\/wp\/v2\/comments?post=9032"}],"version-history":[{"count":3,"href":"https:\/\/www.wjst.de\/blog\/wp-json\/wp\/v2\/posts\/9032\/revisions"}],"predecessor-version":[{"id":9037,"href":"https:\/\/www.wjst.de\/blog\/wp-json\/wp\/v2\/posts\/9032\/revisions\/9037"}],"wp:attachment":[{"href":"https:\/\/www.wjst.de\/blog\/wp-json\/wp\/v2\/media?parent=9032"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.wjst.de\/blog\/wp-json\/wp\/v2\/categories?post=9032"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.wjst.de\/blog\/wp-json\/wp\/v2\/tags?post=9032"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}